Most neurologists I've seen with my daughter (who has video game seizures) don't know a great deal about photosensitivity. They rely heavily on your EEG results, even though EEGs are far from reliable. Also, photic stimulation with a strobe light does not replicate the experience of playing a video game, so your response in the EEG lab doesn't necessarily predict how your brain will handle the conditions of playing an actual game. I'm going to guess that you were tested with the standard strobe light procedure (photic stimulation) and that the EEG didn't show any unusual response. Apparently only 3-5 percent of people with epilepsy test positive for photosensitivity. It's a genetic trait that is passed down separately from genes for "regular" epilepsy. Most people with epilepsy don't have a problem with visual provocation from video games and other flashing things--and some get offended when the rest of the world assumes that they do. They don't want to limit their everyday activities unnecessarily because of a risk that is no higher for them than for anyone else.
Researchers say that one way to prevent seizures while playing if you are in fact photosensitive is to keep one eye covered. You can wear a patch. Without both eyes supplying the brain's vision receptors with input that can be overstimulating, seizures won't happen.
If you want to read more about this subject, I've got a site, videogameseizures.org and a blog, videogameseizures.wordpress.com, where I have links to a lot of information. Best of luck.
Jessica Solodar
