Do diagnosticians occupy the same reality as me?

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lacktheknack

Je suis joined jewels.
Jan 19, 2009
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Allow me to give you some background: My sister is infertile, asexual and doesn't want to have children, ever.

She has had an awful unending menstrual flow ever since she started her period. There's no "time of the month", there's only "non-stop Lovecraftian horror", unless she's medicated. The medication has caused weight gain, masculization (she has a bit of facial hair now, as well as other things), possibly incontinence, and a host of other nuisances.

For the past two years, she has had vicious uterine cramping and non-stop pain. Pain in the morning, pain in the evening, pain at night, pain so damn bad she spent a whole week crying non-stop.

The medication for that gives her insane dry-eye, messes with her digestion, and makes the incontinence worse.

She's a wreck.

After TWO YEARS, we have finally concluded that her ovaries are secreting something that send her uterus into constant cramping. She has repeatedly requested that we take the whole damn thing out, and quite frankly, we're at the end of our rope, and asked a specialist about the operation.

To be clear, this is NOT female castration. This is removing the uterus, NOT the ovaries. If anything, her estrogen will finally return to normal levels if she doesn't have to take the medication any more.

So after running through a rather short list of side effects of the operation (Remember, you can never have children! Yeah, not an issue), we said "we'd like to get the operation". Finally, my sister can be pain-free, live as normal a life as possible, and we can see her smiling again. Merry Christmas to us!

...Until the diagnostician told us that her peers recommended we be put before an ethics board.

You see, my sister has a vast array of mental and physical disabilities, NONE of which have been properly diagnosed. She's bright enough, but she has process thoughts out loud, has difficulty seeing differences between objects, has a fairly short train of logic, etc, as well as half a dozen anxiety issues and physical deficiencies (one of which caused this whole debacle in the first place).

So, logically, by requesting that she have her uterus removed, which SHE HERSELF suggested, we are likely to be taking advantage of her mental state.

So, let's recap. It's been recommended that we stand trial to an ethics board, who ALWAYS rule in the "favor of the victim" (What victim? What favor?), which will likely result in her prolonged suffering due to her special needs, all because she has special needs.

I haven't been this genuinely pissed off in a while.

So, anyone want to explain how this crap works to me? Any other horror stories of this sort?

If nothing else, can I have cute cat videos? Me and my sister would appreciate it. :(
 

Vault101

I'm in your mind fuzz
Sep 26, 2010
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lacktheknack said:
so in other words they somhow think she's incapable of making the decision herself..thats just insulting

on top of that....holy shit...I'm sorry to hear that
 

lacktheknack

Je suis joined jewels.
Jan 19, 2009
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Vault101 said:
lacktheknack said:
so in other words they somhow think she's incapable of making the decision herself..thats just insulting

on top of that....holy shit...I'm sorry to hear that
Even worse, they're automatically assuming that we "planted" the idea in her head in the first place. In reality, we were kind of aghast when she brought it up, but after finding out the side-effects were minimal, and after enduring this for two years, it was US who came around, not her.
 

shrekfan246

Not actually a Japanese pop star
May 26, 2011
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lacktheknack said:
Vault101 said:
lacktheknack said:
so in other words they somhow think she's incapable of making the decision herself..thats just insulting

on top of that....holy shit...I'm sorry to hear that
Even worse, they're automatically assuming that we "planted" the idea in her head in the first place. In reality, we were kind of aghast when she brought it up, but after finding out the side-effects were minimal, and after enduring this for two years, it was US who came around, not her.
Boy, people sure are smart...

I can't explain any of this, unfortunately, but I can provide another service:

Sorry to hear about your sister's situation.
 

Vault101

I'm in your mind fuzz
Sep 26, 2010
18,863
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lacktheknack said:
Even worse, they're automatically assuming that we "planted" the idea in her head in the first place. In reality, we were kind of aghast when she brought it up, but after finding out the side-effects were minimal, and after enduring this for two years, it was US who came around, not her.
and can she not have children in her current state anyway? (doesnt sound like it) if she's already infertile what difference would this make?...really?

I mean sure mabye they have good intentions, but this sounds like they are more harmfeul than good

though mabye they are just covering their asses and the ethics board will come to the right decision, I don't know
 

lacktheknack

Je suis joined jewels.
Jan 19, 2009
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Vault101 said:
lacktheknack said:
Even worse, they're automatically assuming that we "planted" the idea in her head in the first place. In reality, we were kind of aghast when she brought it up, but after finding out the side-effects were minimal, and after enduring this for two years, it was US who came around, not her.
and can she not have children in her current state anyway? (doesnt sound like it) if she's already infertile what difference would this make?...really?

I mean sure mabye they have good intentions, but this sounds like they are more harmfeul than good

though mabye they are just covering their asses and the ethics board will come to the right decision, I don't know
There's always hope, but seeing how my sister's string of luck has been SO far... hope is small. Actually, I don't think our doctor will make us see the ethics board because she's known my sister for a couple years now, and quite frankly, that would be ideal (if there is an "ideal" in this situation).

shrekfan246 said:
I can't explain any of this, unfortunately, but I can provide another service:
When the kitten half-winked at the camera, it brought a tear of joy to my sister's eye. Which, considering her dry eyes, is a hell of a blessing.
 

lacktheknack

Je suis joined jewels.
Jan 19, 2009
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DVS BSTrD said:
lacktheknack said:
Even worse, they're automatically assuming that we "planted" the idea in her head in the first place. In reality, we were kind of aghast when she brought it up, but after finding out the side-effects were minimal, and after enduring this for two years, it was US who came around, not her.
okay fuck it. Go to the press.
The only thing these sort of people hate more than doing their job is being held accountable.
You might even find some other doctors willing to go through with the procedure.
There's a chance that we won't have to go to the ethics board (due to doctor familiarity), but there's a (significant) chance we will. And if we do, we very well might get the media involved.

But that brings up a host of other problems, such as accidental/purposeful misrepresentation giving out the impression that we are, in fact, manipulating my sister. Imagine the can of worms THAT would be.
 

shrekfan246

Not actually a Japanese pop star
May 26, 2011
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lacktheknack said:
Snip
When the kitten half-winked at the camera, it brought a tear of joy to my sister's eye. Which, considering her dry eyes, is a hell of a blessing.
I find that kittens are the quickest way to get a daily/weekly/monthly allotment of "D'AWWWWWWWW!"

Here, have two more:


And for the serious side of this thread, I hope you guys get lucky and indeed end up with the "ideal" situation out of all of this.
 

lacktheknack

Je suis joined jewels.
Jan 19, 2009
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DVS BSTrD said:
lacktheknack said:
DVS BSTrD said:
lacktheknack said:
Even worse, they're automatically assuming that we "planted" the idea in her head in the first place. In reality, we were kind of aghast when she brought it up, but after finding out the side-effects were minimal, and after enduring this for two years, it was US who came around, not her.
okay fuck it. Go to the press.
The only thing these sort of people hate more than doing their job is being held accountable.
You might even find some other doctors willing to go through with the procedure.
There's a chance that we won't have to go to the ethics board (due to doctor familiarity), but there's a (significant) chance we will. And if we do, we very well might get the media involved.

But that brings up a host of other problems, such as accidental/purposeful misrepresentation giving out the impression that we are, in fact, manipulating my sister. Imagine the can of worms THAT would be.
And I thought Canada was the one with the GOOD healthcare system ~_~
I your sister confident/competent enough to do an interview herself? That would go a long way in preventing misrepresentation.
If anything, FOX would love to get a hold of this story just to make your country look bad. How patriotic are you?
Canada's healthcare is great, once you're out of the waiting line. The hoops and wait are abysmal. >_<

And I think I'll avoid getting FOX to do anything about it. I don't really like them in the first place.
 

Andy Shandy

Fucked if I know
Jun 7, 2010
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While I don't have any horror stories, and can't explain why they've done what they've done, and in fact do not have cat videos at hand...I do have gifs of the feline variety!





Anyway, I hope it all works out for her, sooner rather than later.
 

krazykidd

New member
Mar 22, 2008
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Look at it from their point of view . This is not something to be taken lightly , especial is someone has multiple issues . If you guys have nothinf to hide there should be no problem . You see , you guys are biased because it's family and you see her everyday. You have good intentions , but sometimes that isn't enough . It's their job to make sure this is the best course to take . Better safe than sorry .

That being said , i hope everything works out for the best for all parties.
 

Spade Lead

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Nov 9, 2009
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lacktheknack said:
Even worse, they're automatically assuming that we "planted" the idea in her head in the first place. In reality, we were kind of aghast when she brought it up, but after finding out the side-effects were minimal, and after enduring this for two years, it was US who came around, not her.
It isn't about whether you coerced her or not so much as what can happen to the surgeons if something goes wrong. This is not about "You made her want to do it" as much as it is about "You fucked up my daughter's surgery, we want your house, your car, and your bank accounts!"

Blame all of those people who had a problem and wouldn't take less than $10,000,000 in damages.
 

Spade Lead

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Nov 9, 2009
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lacktheknack said:
There's a chance that we won't have to go to the ethics board (due to doctor familiarity), but there's a (significant) chance we will. And if we do, we very well might get the media involved.

But that brings up a host of other problems, such as accidental/purposeful misrepresentation giving out the impression that we are, in fact, manipulating my sister. Imagine the can of worms THAT would be.
If you do that there isn't a good surgeon in the country who will touch your sister's surgery because they will fear an accident and a malpractice suit.
 

lacktheknack

Je suis joined jewels.
Jan 19, 2009
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Spade Lead said:
lacktheknack said:
Even worse, they're automatically assuming that we "planted" the idea in her head in the first place. In reality, we were kind of aghast when she brought it up, but after finding out the side-effects were minimal, and after enduring this for two years, it was US who came around, not her.
It isn't about whether you coerced her or not so much as what can happen to the surgeons if something goes wrong. This is not about "You made her want to do it" as much as it is about "You fucked up my daughter's surgery, we want your house, your car, and your bank accounts!"

Blame all of those people who had a problem and wouldn't take less than $10,000,000 in damages.
No, it's not. Don't act like you know everything about our own situation. We've gotten the message, we know the reasons. There's not a thing the ethics board can do about messed up surgeries.

Spade Lead said:
lacktheknack said:
There's a chance that we won't have to go to the ethics board (due to doctor familiarity), but there's a (significant) chance we will. And if we do, we very well might get the media involved.

But that brings up a host of other problems, such as accidental/purposeful misrepresentation giving out the impression that we are, in fact, manipulating my sister. Imagine the can of worms THAT would be.
If you do that there isn't a good surgeon in the country who will touch your sister's surgery because they will fear an accident and a malpractice suit.
I'm in Canada, brah. They're covered for malpractice by the government. Not only that, but malpractice suits are rare here anyhow. We don't feel the need to reclaim $10,000,000 because the surgery is almost entirely paid for by the government.

And if surgeons are "worried they might have an accident", then that's pathetic in itself.
 

Marter

Elite Member
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Oct 27, 2009
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Wait. We actually have that kinda thing in Canada? That's messed up, dude.

Hopefully the case goes well for your sister. I hope that she's able to have the operation (and that it's successful, goes well, and so on) and that the ethics board doesn't mess with that decision.
 

Launcelot111

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Jan 19, 2012
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This is aggressively stupid on the doctors' part. If your sister expresses that she wants a procedure and the doctor concurs that that course of action would actually do some good, then I really don't see any ethical dilemma. Hope the case gets pushed through fast and your sister gets whatever treatment she needs.

 

LostCrusader

Lurker in the shadows
Feb 3, 2011
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Sorry to hear about that. Is it really a trial kind of situation? Might just be that the hospital administrators need to verify that it is what you sister wants?

Also, hope this helps and isn't a broken link.